www.curejm.com Forum Index www.curejm.com
Cure JM Foundation Forum Archive

Please note, this message board is no longer active.
You may view old messages for reference, but you will not be able to post new information.
Please visit the new Cure JM Connect Online Community to reach out to other JM Families.
Please note: Your old Cure JM Message Board Login is no longer valid. You will need to set up a new account for Cure JM Connect.
 FAQFAQ   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 

Make a Donation   -   Go to Cure JM Foundation Home Page

Writings for Rare Disease Day - Feb. 28

 
This forum is locked: you cannot post, reply to, or edit topics.   This topic is locked: you cannot edit posts or make replies.    www.curejm.com Forum Index -> News and General Information
View previous topic :: View next topic  
Author Message
Kevin



Joined: 31 Mar 2008
Posts: 22
PostPosted: Thu Mar 04, 2010 7:26 am    Post subject: Writings for Rare Disease Day - Feb. 28 Reply with quote
FYI ...

Feb. 28 was Rare Disease Day worldwide. I wrote this piece for our local newspaper about it, our battle to get our daughter diagnosed, and the Cure JM fundraiser. Hope you enjoy it:

http://www.stamfordadvocate.com/opinion/article/McKeever-No-condition-is-rare-when-it-s-your-381021.php#page-1

Did a different piece for my blog on the actual day to help support a friend whose son has a different rare disease:

http://blogonkevin.blogspot.com/2010/02/rare-disease-day-alone-we-are-rare.html

Cheers, everyone ...
_________________
Kevin
Dad of Megan, diagnosed in Oct. 2002 at age 2
Always Home and Uncool -- the blog: http://www.blogonkevin.blogspot.com
Back to top
View user's profile Send private message Visit poster's website
SusanMerrin



Joined: 18 Apr 2008
Posts: 384
Location: Scarborough, Ontario, Canada
PostPosted: Thu Mar 04, 2010 8:44 am    Post subject: Reply with quote
Kevin,

You are wonderful. Both your article and your blog gave me goosebumps. You have such a way with words. Well done!!!

Smile

Susan
_________________
Dominic's Nana
(dx 04/23/07)
www.caringbridge.org/visit/dominicmerrin
http://www.firstgiving.com/fundraiser/susanmerrin/Cure-JM-2012-Educational-Conference-and-Fundraisin
Back to top
View user's profile Send private message Visit poster's website
R A C A



Joined: 15 Jan 2010
Posts: 76
Location: Lake George, CO
PostPosted: Tue Mar 09, 2010 6:16 pm    Post subject: Reply with quote
Thank You once again. First for the Video and now the article. I posted this one as well on my FB page....
_________________
Anke
Connor & Alexander's Mom & Advocate
Diagnosed 1-11-2010
www.raca-smith-family.blogspot.com
or feel free to look me up on FB under www.facebook.com/anke.smith Smile
Back to top
View user's profile Send private message Visit poster's website
Display posts from previous:   
This forum is locked: you cannot post, reply to, or edit topics.   This topic is locked: you cannot edit posts or make replies.    www.curejm.com Forum Index -> News and General Information All times are GMT - 8 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum


Powered by phpBB © 2001, 2005 phpBB Group