 |
|
Pedro |
Hy, my name is Pedro and I am 7 years old . I live in Sao Paulo, Brazil.
I was diagnosed with JDM in 2002, my symptoms were skin rash and Heliotrope Eyelids.
My parents did not notice any muscle weakness at the time I was diagnosed.
I am still on Prednisone and other drugs at reduced doses, but elbow rash persists.
I am a very active boy and I am a big Star Wars fan . I have a healthy sister, Maria, she is one year younger than me.
It has not been easy for mom and dad since I have to take medicines every day, but out of that I have a very normal life.
I am sure a clever scientist will soon find a cure for JDM. We can help if we
can act together.