School Resources

Informing your child's school personnel about Junvenile Myositis is important.  Parents have reported a variety of avenues they have taken in order to do this.  Depending on your child's situation and your school district, the following information and/or links may be of assistance to you:
 
Informal Approach: 
  • Have child's rheumatologist draft a letter to the school detailing your child's specific needs. A sample letter is provided here:
    Sample letter for your child's school
  • Print copies of What is JM? for school personnel
  • Request meeting with school personnel (principal, nurse, teacher) to go over letter, detail any specific special needs and answer questions.

Formal Approaches:

Information Center on Disabled & Gifted Education Frequently Asked Questions
http://www.ericec.org/faqs.html

State Resource Sheets for Disability Related Issues
http://www.nichcy.org/states.htm

Special Education & Rehabilitative Services Legislation (IDEA & The Rehabilitation Act)
http://www.ed.gov/policy/speced/leg/edpicks.jhtml?src=ln

Section 504 of the Rehabilitation Act of 1973 
http://www.ericec.org/faq/sectn504.html

The Individual Family Service Plan (IFSP) 
http://ericec.org/digests/e605.html

IEP's versus 504 Plans 
http://www.slc.sevier.org/iepv504.htm

Guide to the Individualized Education Program
http://www.ed.gov/parents/needs/speced/iepguide/index.html
   
   

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