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I had a lot of issues with prednisone, I started at 80 mg daily and I just about when crazy after awhile, I could hardly keep a thought for more than a few min., I would talk non stop, I couldn't sleep, and the water weight and cheeks where awful. I am now down enough for it not to bother me, but what really helped was trying to find something to focus on, that summer I read something like 10 books in a month it was the only way to keep me from climbing up a wall
I also had issues with heightened anxiety and some depression, and if any one else is, the medications they put me on are a god send, lexapro is very helpful with anxiety and depression.
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[My daughter] regularly gets long stares from kids and adults. [Her] facial appearance is not normal. Due to lack of fat in her face and being on steroids, her eyes appear puffy and the rest of her face looks sunken. I hear little ones say she looks scary. She just turned 2 and hasn't noticed that she's looked at differently, so I haven't really had to address it yet.
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The mood swings have been the worst for us. We've learned to just leave her alone, and she eventually stops the screaming and kicking. It really upsets our 9 year old though, so we're trying to help her deal with [her sister’s] moodiness. It has changed the entire family and it's hard that things are so different with her now.
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[Our daughter]l will be 5 next month, so maybe being younger has helped us with the whole appearance aspect. She really isn't bothered by the "puffiness" of the steriods, and her friends don't treat her any different. Her daycare has "swim days" on Tuesday, so now we're trying to find a balance so she can participate on a smaller scale. They swim at 11:00 - peak sun time! She doesn't like wearing her hat or long-sleeve swim suit - she looks different and that bothers her. It's going to be a real challenge this summer!
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At nine she is very sensitive to teasing and is very aware of any physical differences. She said that she burst into tears in class the other day because she had been sitting there thinking that she just wanted to be normal. It doesn't help that she broke her arm earlier this month just another thing to have to deal with. I try to talk with her about her worries and think that helps. Just getting it all out and discussing how she feels is better than bottling it all up. I've told her that she has every right to get upset and angry sometimes and she seems able to tell me how she feels. I have become pretty good at reading her moods so can usually tell when something is bothering her. We have also seen the psych team at the hospital but I didn't really think they were much help. Although I am thinking of trying them again.
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