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The Cure JM Foundation: Volunteers working to find a cure.
Juvenile Dermatomyositis and Juvenile Polymyositis are the most common forms of JM (Juvenile Myositis) - a rare autoimmune disease that affects approximately 17,000 children and young adults in the United States. JM causes a variety of debilitating symptoms
including:
• Muscle weakness and pain
• Severe fatigue
• Rashes
• Swallowing and digestive difficulties
• Lung and heart problems
• Vasculitic ulcers
• Calcinosis
Some children may experience a remission, while others will battle JM their entire life,
and complications from this disease can prove fatal. Medication can help to alleviate the symptoms of Juvenile Myositis, but there is no known cure.
As its name implies, the
Cure JM Foundation, a 501c(3) non-profit
organization, was created specifically to find such a cure, while also providing
support and information for families suffering from JM.
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This website is provided for educational and informational purposes only. Cure JM is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site author and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Cure JM endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.
©2004-2008 CureJM Foundation. All rights reserved.
Please review our privacy policy.
Site designed by Gary Bickal,
GBST Media Services. |
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Over the weekend of October 10-11, 2009, Cure JM is holding an educational and fundraising event in Chicago for young adults with JM. The event will include a special presentation by Dr. Lauren Pachman, along with a tour of the Cure JM Center of Excellence in JM Research. JM families and friends are also invited to be part of the Bank of America Chicago Marathon as either a runner, a volunteer or at our rallying station. To register as a volunteer, or “virtual” volunteer please go to www.firstgiving.com/curejm and contact
. Individual runner registration for the Bank of America Chicago Marathon has closed. We have a few spots for JM supporters, please contact:
BANK OF AMERICA CHICAGO MARATHON POST-CLOSING REGISTRANTS SHOULD ALSO CONTACT:
Thanks to our supporters, volunteers, runners and walkers for making the Cure JM Educational Forum and Fundraiser in Carlsbad, CA such a big success. Click here for an update, doctor presentations, pictures and videos from the event.
On August 8th, Savannah Outen and Jessica Lerner will perform a benefit concert for Cure JM in Portland, OR.
Thanks to Damon Smedley, his family and friends for pulling this together. Damon’s son, Mason, has been in the hospital for the past 4 months courageously fighting JM.
Please watch this video about Mason’s journey.
Click here for more concert information
A Monte Carlo Night in California... a golf event in Pennsylvania... These are a few of the upcoming fundraisers organized by Cure JM families. Click here to learn about other events and fundraisers. There might be one in your area! If you’re feeling inspired to hold a fundraiser of your own, click here for idea starters. or click here for the most recent Fundraising Guidelines and Approval Form.
Doctors at the Juvenile Myositis Center at George Washington University, in Washington, D.C. (supported by Cure JM Foundation) have developed a survey for JDM parents and patients to help doctors better understand the issues surrounding the transitioning of health care for children with JDM moving from pediatric-level care to adult-level care.
Please participate so these doctors can help us all. The surveys are anonymous and you may participate even if your child is not yet ready to transition. Thank you for helping the cause!
Click here for the Parent Survey
Click here for the Patient Survey
You can choose from over 700 stores and up to 26% of your purchase goes to Cure JM! Click here to start shopping
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